This information has been developed with a group of volunteers who have their spinal cord injury care provided by the LSCIC. In conjunction with their family members and support workers, and alongside the NHS, charitable and industry partners, the following FAQs were co-designed to cover the key issues they face after leaving the hospital.
The London Spinal Cord Injury Centre (LSCIC) at the RNOH is one of only 11 specialist centres in the UK, designated to receive and treat spinal cord injured patients.
The overarching philosophy of the multi-disciplinary team (MDT) at the LSCIC is that rehabilitation is a journey that takes years and is best delivered through lifelong intervention and support. We aim to ensure that patients have the confidence and knowledge to be able to physically or verbally direct their own care.”
Lifelong care is offered via telephone support, outpatient services and possible re-admissions, to ensure you maintain good health, progress your rehabilitation or address new problems.
Up to and immediately following discharge from hospital, please call or email your allocated Case Manager with any concerns or worries. In out of office hours, contact the ward directly 020 8909 5588/5583.
On discharge from the LSCIC you will be given a list of your LSCIC team contact numbers along with your multi-disciplinary team (MDT) discharge report detailing your individual condition, rehabilitation outcomes and ongoing recommendations. If required, there will be a handover by your Case Manager to the Community Liaison Team for telephone follow-up or a home visit. A home visit is dependent on your needs and is not always necessary.
At about 4-6 weeks after discharge your ongoing, lifelong support will move to the LSCIC Community Liaison Team. They are available to offer support and advice throughout your lifetime. Office hours are 0800 - 1700 Monday to Friday
Once you are at home or living in the community, your key contact for health queries will be your GP. You and your GP will be copied into all medical correspondence to ensure everyone is kept informed and updated on your progress.
RNOH moved to electronic patient records in Nov 2025 and the ‘MyCare’ app allows you to access your health records.
If you have been referred to your local services, they can seek expert SCI advice and support from the LSCIC via the Community Liaison Team.
You will be offered outpatient reviews with your Rehabilitation Consultant or a member of their team and/or a Community Liaison Clinical Nurse Specialist approximately 3 months after discharge and then at increasing intervals thereafter.
This gives you the opportunity to discuss your clinical presentation and share any questions or concerns about your general wellbeing with a face-to-face or telephone appointment. Additional reviews can be requested via the Community Liaison Team, as required.
Case Managers: are an integral part of the MDT and are professionals with specific knowledge of spinal cord injury and discharge planning.
On admission, patients are allocated a named Case Manager who will facilitate patient focussed goal planning meetings throughout your initial inpatient rehabilitation phase. They:
- Obtain your consent prior to liaising with community teams or external services
- Identify your care needs and complete referrals to appropriate teams
- Liaise with relevant external services - including health/continuing heath care, district nurses, social services /nursing or residential homes as required/appropriate/necessary
- Arrange supported community re-integration visits e.g. social trips out
- Support to identify a safe and accessible discharge destination after your rehabilitation, e.g. liaising with your local authority housing and homeless teams, charities, community occupational therapy services
- Support with signposting to financial services and welfare benefit applications e.g. citizens advice bureau and SCI charities
- Arrange meetings with SCI specialist solicitors and independent living advisors
- Are a point of contact and signposting after your initial discharge, before handing over to the Community Liaison CNSs
Martin Chainani, LSCIC Community Case Manager
Nikki Ferguson, Case Manager
Liz Bambury, Case Manager
Anshul Mahida, Case Manager
Debra Howells, Case Manager
Yusra Alanzi, Case Manager
Community Liaison Clinical Nurse Specilaists (CLCNS): are specialist SCI nurses with extensive knowledge of spinal cord injury care and rehabilitation. They provide:
- Life-long follow up to individuals who have sustained a spinal cord injury
- Telephone support and advice for the duration of your life for you, your support workers, family members and community professionals
- Teaching to patients, relatives and carers
- Teaching to health care professionals (HCPs) working in the community and other NHS hospital settings
- Co-ordination of and oversee short stay admissions into ring-fenced beds for further periods of rehabilitation, post discharge
- Management of outpatient clinics at the RNOH, including new patient consultations with the SCI Rehabilitation Consultants, nurse led patient follow up clinics, monthly multidisciplinary clinics, and wound care clinics with our Tissue Viability Nurse Specialists.
- Work with Children and Young People Clinical Nurse Specialist (CYP CNS) to support young people transitioning into adult services.
Natasha Wallace, Community Liaison Clinical Nurse Specialist
Louise Halpenny, Community Liaison Clinical Nurse Specialist
Nancy O’Connor, Community Liaison Clinical Nurse Specialist
Rosa Castro, Community Liaison Clinical Nurse Specialist
Jo Moroney, Clinical Nurse Specialist for children & young people with SCI
Laura Graham, Clinical Nurse Specialist for children & young people with SCI
LSCIC Community Case Manager: The role is funded for two days a week and provides:
- Support to return to independent living from nursing homes
- Support with rehousing into accessible accommodation
- Attendance at care review meetings
- Support with any increase in care needs
- Signposting for housing, benefits, care and equipment issues
- Liaison with local teams in collaboration with the Community Liaison Service
You can contact The LSCIC Community Case Manager on 0208 385 3019 or by email: m.
Martin Chainani, LSCIC Community Case Manager
LSCIC Thearapy Team: Advice from the Occupational Therapy (OT) and Physiotherapy (PT) teams is available following discharge. Please call the teams (OT 020 8909 5509; PT 020 8909 5500) or email karen.
LSCIC Psychosocial Team: a multidisciplinary group of mental health professionals, who provide comprehensive mental, emotional, and social support to individuals living with a spinal cord injury, and their families.
Check the information on your LSCIC discharge contact leaflet for how to get in contact with them. This should be available via the My Care app https://www.rnoh.nhs.uk/services/mycare-rnoh
Q I am worried about a clinical issue such as my bladder, bowels, skin or fertility, and want to know where can I get support?
- There is an FAQs page for GPs on RNOH website Managing Spinal Injuries FAQs by GPs: Royal National Orthopaedic Hospital (rnoh.nhs.uk) that covers a lot of common issues
- LSCIC have also created a number of patient education videos London Spinal Cord Injury Centre: Patient Information Videos - YouTube and the LSCIC Patient Education Pack is available online Education_Pack_2023_-_PDF_-_Nov_2023.pdf (rnoh.nhs.uk)
- Back Up SCI charity offer a wide selection of information about living well with a spinal cord injury Information for people affected by spinal cord injury - Back Up (backuptrust.org.uk)
- Spinal Injuries Association (SIA) charity also have lots of useful resources Living With Spinal Cord Injury - Our Knowledge Hub | SIA
- If you still have questions or concerns, you can contact the Community Liaison Clinical Nurse Specialists rnoh.
liaisonsisters or telephone 020 8909 5594/020 8909 5597.@nhs.net
Q Is there any advice on how to discuss my SCI with my GP?
- There is a health promotion and maintenance checklist to support discussions with your GP https://
www. rnoh.nhs.uk/ download_file/ view/ 288/ 1737/ 462 - There is an FAQs page for GPs on RNOH website Managing Spinal Injuries FAQs by GPs: Royal National Orthopaedic Hospital (rnoh.nhs.uk) that covers a lot of common issues
Q I am getting some changes in sensation or movement and would like to discuss this, who should I contact?
Email community liaison clinical nurse specialists rnoh.
Q I’ve been admitted to my local hospital, who should I contact?
Email community liaison clinical nurse specialists rnoh.
The LSCIC has created an online resource with information on the medical management of patients with a spinal cord injury. This has been designed to help inform doctors and other healthcare professionals on how spinal cord injured patients can best be managed in the community, outside of the specialist centre. Resources :: Royal National Orthopaedic Hospital (rnoh.nhs.uk)
Q In an emergency, who should I contact?
Call 999 for an ambulance or go to your local accident and emergency department.
It is advisable that you take your MDT discharge report with you and any SCI care plans to share with the hospital staff.
The LSCIC has created an online resource with information on the medical management of patients with a spinal cord injury. This has been designed to help inform doctors and other healthcare professionals on how spinal cord injured patients can best be managed in the community, outside of the specialist centre. Resources :: Royal National Orthopaedic Hospital (rnoh.nhs.uk)
If additional support is required whilst you are in hospital, you can email community liaison clinical nurse specialists rnoh.
If it is out of hours, you can call the SCIC ward 020 8909 5588 who are available 24 hours and can contact the on-call SCIC Rehabilitation Consultant, if necessary.
Q I need urgent advice about my SCI care needs, who should I contact?
For urgent care needs, call 111.
The LSCIC has created an online resource with information on the medical management of patients with a spinal cord injury. This has been designed to help inform doctors and other healthcare professionals on how spinal cord injured patients can best be managed in the community, outside of the specialist centre. Resources :: Royal National Orthopaedic Hospital (rnoh.nhs.uk)
If additional support is required whilst you are in hospital, you can email community liaison clinical nurse specialists rnoh.
If it is out of hours, you can call the SCIC ward 020 8909 5588 who are available 24 hours and can contact the on-call SCIC Rehabilitation Consultant, if necessary.
Q I am not under the care of a specialist SCIC, how do I access their services?
If you have a confirmed diagnosis of a spinal cord injury and live within the catchment area of the London Spinal Cord Injury Centre, LSCIC, your GP can refer you using the NHS electronic referral system (ERS). This will generate a referral for assessment.
You can call the LSCIC Outreach team on 020 8909 5121 to discuss referrals and your clinical needs. Email address: rno-tr.
Q What information should I bring to my outpatient appointment?
- Bring a list of your current medications and dosages
- Bring any medical correspondence you have since your last appointment
- Think about any issues you have and write down any concerns or questions to remind you to raise them during the appointment
Q I did not need care before but now I do, how do get help?
You can contact your local council adult social care service and request an assessment of your needs. Apply for a needs assessment by social services - GOV.UK (www.gov.uk)
The LSCIC Community Case Manager can also support you with this and can be contacted on 020 8385 3019,
or by email: m.
Q My care needs have increased, how do I get additional help?
If your care is provided by Social Services, you can contact the adult social care service and request a re-assessment of your needs. Apply for a needs assessment by social services - GOV.UK (www.gov.uk)
If your care is provided by the Continuing Healthcare (CHC) Team, you can contact their Duty Nurse Service. You can find their details through your Integrated Care Board (ICB). Information on finding your local ICB and relevant contact details can be found on nhs.uk
The LSCIC Community Case Manager can support you with this and you can contact them on 020 8385 3019, or by email: m.chainani@nhs.net
Q Do I need to pay for my care?
If you receive care from social services, there is a means test to assess whether you will have to contribute to the cost of your care. If you need advice about this, the Spinal Injuries Association have a Care Advice Service (Tel 0800 980 0501, or email: chc
The LSCIC Community Case Manager can also support you with this and can be contacted on 020 8385 3019, or by email: m.
If you received care through Continuing Healthcare (CHC) funding, then you will not be means tested and will not have to pay for your care.
Q My care needs are not being met by my carers at home/in my nursing home, who can help?
If your care is provided by an agency, you can contact your Care Allocator/Care Co-ordinator at your care agency to inform them of the issues.
If this needs escalating, you can contact the LSCIC community liaison team via email rnoh.
Q My local healthcare provider isn’t listening to me, who can help?
You can contact your LSCIC case manager using the contact information provided when you were discharged, or
- LSCIC community liaison team via email rnoh.
liaisonsisters or telephone 020 8909 5594 / 020 8909 5597@nhs.net - LSCIC Community Case Manager can also support you with this and you can be contacted on 020 8385 3019, or by email: m.
chainani @nhs.net
Q How do I take financial control of my own care?
If your care is funded by Social Services (SS), you can contact the social work team who organised your care package and request for support for Direct Payments to be set up.
If your care is funded by the Continuing Healthcare (CHC) Team, you can contact them via the Duty Nurse and request for support for a Personal Health Budget to be set up.
In both cases you will be given the monetary value of your care package to allow you to employ your own carers.
The LSCIC Community Case Manager can also support you with this and you can be contacted on 020 8385 3019, or by email: m.
Q I have new support workers, and they don’t understand about my spinal cord injury, who can help?
The LSCIC Patient education pack is available online SCI_Education_Pack.pdf (rnoh.nhs.uk) and can help you educate others about your SCI.
You can contact the LSCIC community liaison team via email rnoh.
The Spinal Injuries Association (SIA) also have a Nurse Advocate Service, and you can contact them via their website Find support now (spinal.co.uk) or by calling 0800 980 0501.
Q My carers/personal assistant need help with training, who can help?
The LSCIC Patient education pack is available online SCI_Education_Pack.pdf (rnoh.nhs.uk) and can help you educate others about your SCI.
There are patient education videos to support carer/personal assistant training:
London Spinal Cord Injury Centre :: Royal National Orthopaedic Hospital (rnoh.nhs.uk)
The National Rehabilitation Hospital, Dublin also have a wide selection of patient education resources SCSC Programme - Patient Education and Resources - National Rehabilitation Hospital (nrh.ie) including a video on neurogenic bowel care Useful Resources for Patients, Families and Carers - National Rehabilitation Hospital (nrh.ie)
If you require more information or support, you can contact the LSCIC Community Liaison Team via email rnoh.
The Spinal Injuries Association SIA also offer training Professional training for you (spinal.co.uk).
Q I am a paid carer, what information and support are available to me?
You are entitled to a Carers Assessment from your local council adult social care service which can identify your needs and what support you require.
The LSCIC Community Case Manager can also support you with this and you can be contacted on 020 8385 3019, or by email: m.
Q How do I find out about options for respite care?
You are entitled to a Carers Assessment from your local council adult social care service which can identify your needs and what support you require.
The LSCIC Community Case Manager can also support you with this and can be contacted on 020 8385 3019, or by email: m.
Q My current accommodation is not meeting my needs; how do I get help?
You will need to contact your local occupational therapy adult social care service to complete an access visit to identify whether any adaptations or aids can help you. Apply for equipment for your home if you're disabled - GOV.UK (www.gov.uk)
You could get a grant from your council if you are disabled and need to make changes to your home. Disabled Facilities Grants: Overview - GOV.UK (www.gov.uk)
The LSCIC Community Case Manager can also support you with this and can be contacted on 020 8385 3019, or by email: m.
If you would like to explore options for re-housing, please see below.
Q I need help to apply for housing/re-housing, who can help?
The Aspire SCI charity have a housing advice service, and you contact them by email: housingadvice
If you live in a privately rented property, you will need to approach your local authority and apply to join the local housing register.
If you live in social housing, you will need to contact your local housing officer.
The LSCIC Community Case Manager can also support you with this and can be contacted on 020 8385 3019, or by email: m.
Q I am living in a nursing home and would like to move out, how do I do this?
Your first step is to contact the service funding your placement to discuss your wishes, unless you are paying for this yourself.
The LSCIC Community Case Manager can also support you with this and can be contacted on 020 8385 3019, or by email: m.
Q I am living at home but would like to be in an environment where I get more help such as nursing/residential home/supported living?
You should first contact your Local Authority Adult Social Services or Intermediate Care Board (if you are receiving care and it is health funded).
The LSCIC Community Case Manager can also support you with this and can be contacted on 020 8385 3019, or by email: m.
Q Who provides my equipment?
In each locality, disability equipment stores are jointly funded and run by the NHS and your local authority. Equipment is loaned to you on a long-term basis. Some items of equipment, such as commodes or walking aids, can meet both health and social care needs. Your GP, district nurse, community physiotherapist or occupational therapist can ask for these items to meet your needs.
Other professionals such as local falls prevention services may be able to recommend certain equipment from the local equipment provider/store.
Disability equipment and home adaptations (ageuk.org.uk)
If you need specialist health related equipment, please ask the therapist who has recommended it, to support you with gaining funding from your local Integrated Care Board (ICB).
If you are unsure, please discuss with your GP or your SCI Consultant.
Q Who is responsible for maintaining my equipment?
Any equipment provided will require maintenance by the supplier in agreement with the purchaser.
Q Who is responsible for providing catheters and anal irrigation systems?
If you are receiving continence supplies, you should have been set up with a delivery service when you were discharged from the LSCIC.
If you need extra support, please contact the LSCIC Community Liaison Team via email rnoh.
Q I would like to try different continence products, who do I contact?
It is recommended that you speak to a clinician about your continence needs and seek their recommendations. You can contact the LSCIC Community Liaison Team via email rnoh.
You can also contact your current delivery company (Fittleworth, Charter, Wellspect & Bullen).
Coloplast: Living with a spinal cord injury (coloplast.co.uk)
Hollister: Continence Care | Hollister UK
Qufora: What we do - Qufora
Events such as Naidex (National Disability Expo) may be helpful to see a range of products available: Naidex
Q Who is responsible for providing respiratory equipment?
This depends on your clinical needs. Respiratory equipment will be provided for two reasons:
- Therapy e.g. CPAP (continuous positive airway pressure) or MIE (Manual insufflation/exsufflation) also known as a ‘Cough Assist Device’
- Ventilation e.g. BiPAP (Bilevel Positive Airway Pressure) or NIV (Non Invasive Ventilation)
Any specialist equipment including respiratory equipment such as a cough assist device will have been identified prior to your discharge from LSCIC.
If you require ventilatory therapy, this equipment will be requested and funding requested from your local Integrated Care System (ICS) to provide this. As the purchaser, they are then responsible for consumables and maintenance.
List of consumables is here.
For more information about Integrated Care Boards (ICBs) and Integrated Care Systems (ICS) go to NHS England.
If you require specialist respiratory equipment such as ventilators, tracheostomy and suction, supplies are prescribed and maintained by either:
Lane Fox unit Lane Fox respiratory service - Overview | Guy's and St Thomas' NHS Foundation Trust (guysandstthomas.nhs.uk) or
Brompton Long term home ventilation, weaning and tracheostomy service Sleep and ventilation outreach service | Royal Brompton & Harefield hospitals (rbht.nhs.uk)
Q My equipment needs have changed, who do I contact?
The first port of call would usually be your local council adult social care service to request a needs assessment. Apply for equipment for your home if you're disabled - GOV.UK (www.gov.uk) If you already receive CHC funding, contact your CHC care manager.
Any equipment that has already been provided should have a sticker label stating the provider and their contact details.
If you need further advice, please contact the LSCIC Community Case Manager on 020 8385 3019 or by email: m.
Q I need some support with assistive technology, where can I go?
Aspire is a SCI charity that has an Assistive Technology service which helps people independently access their computer, tablet or phone following spinal cord injury. How Assistive Technology can help you | Aspire.
The service is available in the Spinal Cord Injury Centres where inpatients can trial different tools to see which are best for them. They can also be contacted by people in the community who wish to obtain information and guidance on using their devices.
If you have been assessed by Aspire Assistive Tech team and need any advice after discharge, please contact via email technology
More information can be obtained on the Aspire website:
Q I would like to buy specialist equipment but can’t afford it. What help is available?
There are charities that give grants for specialist equipment and there is an organisation which helps you search for ones based on location, age, occupation, and health needs:
Disability Grants - Charitable Funding for the Disabled (disability-grants.org)
The Aspire Law Spinal Cord Injury Grant Fund is for anyone who has sustained a spinal cord injury in the last 12 months and needs immediate financial support (up to £500): Spinal Cord Injury Emergency Grants | Aspire Law
Access to Work can help you get or stay in work if you have a physical or mental health condition or disability. Through Access to Work, you can apply for:
- a grant to help pay for practical support with your work
- support with managing your mental health at work
- money to pay for communication support at job interviews
- support with funding of wheelchairs and travel to and from work
Crowdfunding may be an option to explore:
What is Crowdfunding? Campaign Basics Explained (gofundme.com)
Crowdfunding for Good from JustGiving
Q Is there a list of useful approved independent living aids?
There is no list of approved aids or equipment that is endorsed by LSCIC, but the companies below have been recommended by individuals with SCI.
- The Active Hands Company | Limited Mobility Gripping Aids
- Drinking aids – Hydrant drink bottle https://
www. hydrateforhealth.co.uk/ our-products/ the-hydrant/ - Grooming aids - Dressing & Grooming For Elderly & Disabled | Mobility World – Mobility World UK
- Fold Flat Classic Book Stand - NRS Healthcare Pro
- Household aids - Household Aids | Daily Living Aids - NRS Healthcare Pro
- Easi-Grip Garden Tools with Arm Support Cuff - Easi-Grip Garden Trowel with Arm Support Cuff from Essential Aids
Some people with a spinal cord injury can walk with or without aids or assistance, whilst others use a wheelchair for some or all of their mobility needs.
Q I can walk but still struggle with my mobility; what support is available?
For advice about walking or gait re-education, mobility aids and equipment please speak to your LSCIC Physiotherapist or Occupational Therapist.
The LSCIC Therapy Team can be contacted by calling OT 020 8909 5509; PT 020 8909 5500 or email karen.
Back Up provide information for people who can walk with an SCI
Q Where is my wheelchair and seating equipment from?
Your wheelchair and seating equipment will have been assessed by your LSCIC Occupational Therapist and a referral with recommendations made to your local Wheelchair Service (WCS). Every GP surgery in the country has an identified WCS that their patients are seen by. Directory of Services – National Wheelchair Managers Forum
Wheelchair Services are NHS funded and responsible for your lifetime needs for posture and seating equipment. Ideally this should be reviewed annually. If you have any concerns, please contact your local wheelchair service to discuss.
The Wheelchair Charter is a set of six principles that seek to ensure that everyone who needs a wheelchair gets one, and no one is left without the equipment they need because of where they live.
Q What do I do if my wheelchair breaks?
If your wheelchair breaks, please contact your local WCS. Their details will be in your LSCIC Contact Booklet given to you on discharge.
Wheelchair repairs must only be completed by the WCS’s Approved Repairer. This is a free repair and maintenance service for all equipment supplied by a Wheelchair Service. Please do not attempt to repair or modify your wheelchair yourself.
Q How do I self-purchase my own wheelchair?
Wheelchair User - The Wheelchair Alliance (wheelchair-alliance.co.uk)
This page explains the different ways you can get a wheelchair in England, depending on your individual circumstances and location.
Q What is the Personal Wheelchair Budget (PWB)?
A personal wheelchair budget is a resource available to support people’s choice of wheelchair NHS England » Personal wheelchair budgets
If you want a higher specification wheelchair than your wheelchair service (WCS) is offering, you can use your Personal Wheelchair Budget (formerly known as the Voucher Scheme) to put your own money towards the cost of an alternative wheelchair.
If you select your wheelchair from a range that your WCS supply, they are likely to offer you the option to have your wheelchair maintained by their Approved Repairer with the understanding they still own the wheelchair.
If you choose a wheelchair they do not usually supply, they will give you a voucher for the cost of the wheelchair they feel meets your clinical need and a nominal additional sum of money for maintenance. In this instance the wheelchair is yours and you are responsible for all maintenance for the lifetime of the wheelchair which is typically considered to be five years.
Q When should I use my Personal wheelchair budget (PWB)?
We recommend you do not use your PWB on your first wheelchair following discharge as you will not be familiar enough with your longer-term needs and would benefit from being able to use it when you have more experience of using a wheelchair in your local community.
Q What do I do if I have a problem with my comfort, posture or function in my wheelchair?
Your first port of call for any intervention is your WCS. Contact them and let them know your issue so they can try and help you.
Q My local WCS is not able to meet my needs, can I have my posture and seating reviewed by the Occupational Therapists in the London Spinal Cord Injury Centre?
If your WCS has been unable to meet your needs, you can contact the LSCIC Occupational Therapy Service and request an outpatient appointment by emailing karen.rawlins@nhs.net or calling 020 8909 5509.
There is a waiting list for this service and any recommendations for alternative equipment will still need to be met by your WCS or privately purchased.
Q I would like to improve my wheelchair skills, what resources are available?
Back Up SCI charity offers a range of wheelchair skills training for all ages and abilities: Wheelchair skills for people with a spinal cord injury | Back Up (backuptrust.org.uk)
They have a wheelchair skills app with videos to support the practical sessions,
They also offer information about using a powered wheelchair
Freedom Wheelchair Skills offers peer-led teaching of everyday skills and techniques to get the most out of life while using a wheelchair.
LSCIC have developed several wheelchair skills videos:
Q What general financial advice is available for a person with a spinal cord injury?
Aspire offer advice about welfare benefits, money matters and grants for individuals with a SCI.
The Citizens Advice Bureau offer general financial advice.
The government webpage offering advice about benefits.
Q How do I find out what benefits I’m entitled to?
There are welfare benefits available for those both in and out of work. The Aspire SCI charity have a benefits advice service.
Aspire's Welfare Benefits Service can help with all stages of your claim, from a benefits entitlement check and initial application, to any appeals processes.
If you have been asked to complete an award review form, or your benefits have been stopped or reduced, we would suggest getting in touch with the Welfare Benefits service in the first instance for support.
To talk to an Aspire Specialist Welfare Benefits Advisor, call 020 8420 6711 or email welfarebenefits
For general information, there is also a Welfare Benefits FAQs page available on the Aspire website:
Alternatively, the Citizens Advice Bureau can also support you,
Benefits calculators - GOV.UK (www.gov.uk)
Q My benefits have been stopped or reduced, who can help me?
Aspire's Welfare Benefits Service can help with all stages of your claim, from a benefits entitlement check and initial application to any appeals processes. If you have been asked to complete an award review form, or your benefits have been stopped or reduced, we would suggest getting in touch with the Welfare Benefits service in the first instance for support.
To talk to an Aspire Specialist Welfare Benefits Advisor, call 020 8420 6711 or email welfarebenefits
For general information, there is also a Welfare Benefits FAQs page available on the Aspire website.
Q How do I find out what financial discounts may be available and get advice on budgeting?
Aspire's Money Matters is a free, impartial and confidential telephone service that can help you take back control of your finances. They can help with budgeting, maximising your income and looking at options if you're faced with debts or money worries.
To talk to Aspire's Money Matters Specialist call 020 8420 8960 or via the link to Aspire webpage of FAQs about the Money Matters service.
The Aspire ‘Money Matters’ offer a personalised service which can help by:
• Completing a full assessment of your financial situation.
• Working out your personal budget plan to understand what your income and outgoings are.
• Discussing ways, you may be able to maximise your income by cutting costs.
• Explaining how you can take advantage of special utility deals and a range of everyday discounts.
• Hints and tips on how to save regularly.
• Explaining options to deal with commitments you are struggling to pay.
• Helping you fill out forms and understand creditor requirements.
• Although they are unable to give regulated financial advice, they can take forward on your behalf any proposals you want to put to your creditors to help resolve any debts you may have.
• Providing ongoing support to become debt free and budget effectively.
Additional financial support for people with disabilities
- Get VAT relief on certain goods if you have a disability - GOV.UK (www.gov.uk)
- How can disabled people get help with energy bills? - Energy Saving Trust
Q I’m a Carer, how do I find out what benefits I’m entitled to?
There may be financial support available if you are unable to work or can only work part-time because of your caring responsibilities.
The Aspire SCI charity have a benefits advice service. To talk to a specialist Welfare Benefits Advisor, call 020 8420 6711 or email welfarebenefits
The Aspire Welfare Benefits Service can help with applications for Carers' Allowance for carers of individuals with SCI.
For more general information on carer benefits you can go to:
Q I’m having difficulty paying my rent / mortgage / debts, who can help me?
Aspire's Money Matters is a free, impartial and confidential telephone service that can help you take back control of your finances. They can help with budgeting, maximising your income and looking at options if you're faced with debts or money worries.
To talk to Aspire's Money Matters Specialist call 020 8420 8960 or Email welfarebenefits
They can advise on different options including, grants available, benefits support and referral to other services.
General Financial Advice is available from:
- The Citizens Advice also have a debt advice service
- Benefits and financial support if you're disabled or have a health condition - GOV.UK (www.gov.uk)
Q What support is available to help me return to work?
Financial support: If you require financial support for travelling to work and any equipment and adaptations, because of your spinal cord injury, there is a scheme called Access to Work.
Back Up SCI charity offers a course supporting return to work after SCI
Vocational support: Back Up SCI charity has a ‘vocational specialist’ who can provide advice and support to help individuals return to work, training or volunteering. They can offer an extensive ‘Employment Toolkit’ drawing on case studies covering a range of questions people often have, skills for work courses and careers fairs.
For more information go to Returning To Work After Spinal Cord Injury | Back Up (backuptrust.org.uk)
Aspire is a charity for people with SCI and can offer support with planning your return to work.
Spinal injuries association (SIA) charity has ‘support network coordinators’ to advise about return to work or volunteering.
Cauda Equina Champions Charity offer CES awareness education to employers to support patients returning to work, requesting adjustments in the workplace etc.
Q My employer is not supportive of me returning to work, what support is available to me?
There are legal protections included in the updated Equality Act 2010 that require employers to ensure they have considered reasonable adjustments to enable a person to return to work.
Aspire is a charity for people with SCI and can offer support with planning your return to work.
Cauda Equina Champions Charity offer CES awareness education to employers to support patients returning to work, requesting adjustments in the workplace etc.
Q What support is available with transport costs?
There are different schemes for support with public transport depending on where you live. To find out more please contact your local council adult social care service.
If you require financial support for travelling to work because of your impairment, there is a scheme called Access to Work.
Aspire SCI charity have a specialist Welfare Benefits Advisor, call 020 8420 6711 or email welfarebenefits
Spinal Injuries Association (SIA) have some useful info available.
For more general information about supporting return to work
Q Where do I go to seek legal support and advice about potential compensation?
If you have been injured because of an accident, clinical negligence or a criminal action, you may be entitled to compensation. There are solicitors which specialise in spinal cord injury and can support you with this which can be available pro bono (for free). Please contact your case manager for more information.
The two leading independent guides to the legal profession are the Legal 500 and Chambers & Partners Guide. They rank law firms according to their expertise in various areas (and then A-Z within each ranking) and the relevant category would be Claimant personal injury. Below are the links to the two directories:
NB There is no separate section in these guides specifically for spinal cord injury so anyone looking to instruct a solicitor in relation to such an injury should make sure that they are familiar with dealing with such cases. It is important to ask questions including how long that solicitor has been working in the field of SCI and what other sort of cases they deal with, to try and gauge their experience and expertise.
Choosing the right law firm for you is an important decision and it is recommended to speak to at least three specialist firms before deciding who to use.
Stewarts Solicitors have a contract with LSCIC to provide pro bono legal advice for inpatients.
Additional information can be found via the SCI charity websites who offer guidance on who to approach for legal advice:
Back Up: Find A Spinal Cord Injury Solicitor | Back Up (backuptrust.org.uk)
Spinal Injuries Association (SIA) : Connect to other support (spinal.co.uk)
Cauda Equina Champions charity have a dedicated CES expert legal panel. This panel has been through a strict vetting process to ensure patients get the very best possible legal advice.
Q Where can I go to seek general legal advice?
There is often free legal advice available for issues such as debt management, power of attorney, private health insurance claims. For more information, you can contact the
The main SCI charities offer guidance on who to approach for legal advice:
- Find A Spinal Cord Injury Solicitor | Back Up (backuptrust.org.uk)
- Connect to other support (spinal.co.uk)
- Cauda Equina Champions charity
The Citizens Advice Bureau can also support you Citizens Advice
Home | Disability Law Service (dls.org.uk) provide free legal advice on community care, employment, housing and welfare benefits to disabled people and their carers to ensure that they have access to their rights and justice.
There is also a service called the Major Trauma signposting partnership (MTSP) if you sustained your injury because of an accident.
If you are unsure you can contact The LSCIC Commuity Case Manager on 020 8385 3019 or by email: m.
People often have mixed emotions at the thought of leaving hospital and going home. It is positive to have completed rehabilitation but loss of your previous life and independence presents significant challenges and can be overwhelming.
Everyone’s coping strategies are different and there is support available if you need it.
Q What support is available for me in coping and adjusting to having a spinal cord injury?
It is normal to feel sad, angry, numb or anxious at times and you will need time to grieve for your loss and allow yourself and your family time to keep adjusting. You are not alone and there are several ways to find emotional support.
If you have completed your rehabilitation at the LSCIC you will have been offered support from a member of the LSCIC Psychology team. Check the information on your discharge contact leaflet for how to get in contact with them or contact the LSCIC Community Liaison Team via email rnoh.
There is also support offered by the SCI charities/organisations who offer information, peer support, counselling, short courses, and online group sessions. There are also sessions run exclusively for relatives and partners.
Back Up offers a ‘What Next’ course which is specifically designed for people who are newly injured and leaving their first episode of care and is designed to bridge the gap from rehab to home
Q What support is available for friends and family coping and adapting to a loved one having a spinal cord injury?
Different members of the family and friends will process what has happened in different ways. It is normal to feel all sorts of emotions, and you will not feel the same things at the same time, as the others who are close to you.
LSCIC family days are organised in collaboration with SCI charities. Contact LSCIC Patient Education team via the LSCIC ward for information about this on 020 8909 5588.
There are several organisations offering emotional support following SCI, from people with lived experience including, Back Up, Spinal Injuries Association (SIA), CESCI, and Cauda Equina Champions Charity. See below for more information.
Back Up offer family peer support and mentoring:
- Peer support is speaking to someone who has been through a similar experience to find support and develop coping strategies.
- Relatives’ sessions are run by Back-Up in conjunction with the spinal cord injury centre staff. You will hear from a SCI Consultant explaining what a spinal cord injury is, Clinical Nurse Specialists educating on bladder, bowel & skin management, Clinical Psychologists offering guidance on looking after yourself and managing relationships, as well as hearing other family members stories and learning from their lived experience. Attendees are encouraged to come along with any questions they may have and to draw on professional and lived experiences in the room.
- Back Up Lounge is an online forum open every other Wednesday from 6 pm – 7 pm to everyone aged over 18 affected by spinal cord injury, where no conversation topic is off-limits. It features a Family Lounge that provides the opportunity to come and chat with the Back Up Family Support team and the opportunity to meet other family members of someone with a spinal cord injury. These are online sessions that you can join and listen to with no obligation to participate, unless you feel comfortable to do so:
Spinal Injuries Association (SIA) advise: ‘If you can, talk to your family about how you’re feeling. See if you can find common ground and address any problems as they come up rather than ignoring them.’
They offer access to talk to your local support coordinator who can refer you onto one of their specialist counsellors who themselves have SCI.
Cauda Equina Champions Charity is a patient-led organisation supporting those with the condition, and their families, with a wide range of bespoke services including funded CBT and clinical psychology therapy, psychosexual therapy, CES residential workshops, peer support via monthly online meetings and a CES buddy service
CESCI are a support group for individuals with a cauda equina spinal cord injury and their families. They offer information, peer support, counselling, short courses, and "lounges" or online group sessions. There are also sessions run exclusively for relatives and partners.
Q What mental health support is available to me after I leave hospital?
Once you leave hospital your first line of support is your GP. Your mental health is as important as your physical health. You will not be wasting anyone's time.
You may benefit from a discussion with one of the LSCIC Psychosocial team.
The Psychosocial team is a multidisciplinary group of mental health professionals, who provide comprehensive mental, emotional, and social support to individuals living with a spinal cord injury, and their families.
Check the information on your discharge contact leaflet for how to get in contact with them or you can contact the LSCIC community liaison team via email rnoh.
You can also look at the support offered by the SCI charities/organisations ho offer information, peer support, counselling, short courses, and online group sessions. There are also sessions run exclusively for relatives and partners.
- Spinal Injuries Association (SIA) offers Specialist SCI Counselling on the phone or via video call
- NHS Mental Health Services There is also information and support available through the NHS (Mental health - NHS) and help to self-refer to Talking Therapies via NHS England » NHS Talking Therapies, for anxiety and depression.
Q What emotional support is offered by SCI charities?
There are several SCI organisations offering emotional support following SCI, from people with lived experience including: Spinal Injuries Association, Back Up, CESCI, and Cauda Equina Champions Charity. See below for more information. Peer support is speaking to someone who has been through a similar experience to find reassurance, practical suggestions, empathy and emotional support.
The Back Up Lounge is an online forum open to everyone aged over 18 affected by spinal cord injury, where no conversation topic is off-limits.
Mentoring for people affected by spinal cord injury | Back Up (backuptrust.org.uk) Back Up’s Mentoring service links people with a spinal cord injury and their family members to volunteer mentors. These mentors come from all walks of life and have been through a similar experience to their mentees. They understand and can help you come to terms with what has happened and adjust positively to life post-injury.
Family support - Back Up (backuptrust.org.uk) family rehab services are available to all family members and friends of anyone with a SCI.
Spinal Injuries Association (SIA) offers SCI specialist counselling by phone or via video call.
Cauda Equina Champions Charity is a patient-led organisation supporting those with the condition, and their families, with a wide range of bespoke services including funded CBT and clinical psychology therapy, psychosexual therapy, CES residential workshops, peer support via monthly online meetings and a CES buddy service.
CESCI are a support group for individuals with a cauda equina spinal cord injury. They offer information, peer support, counselling, short courses, and "lounges" or online group sessions. There are also sessions run exclusively for relatives and partners:
Q I am feeling, low, depressed or anxious, where can I get help?
If you need urgent help click ‘I require URGENT HELP, who do I contact?’
If you do NOT need urgent help, you may benefit from a discussion with one of the SCI Psychosocial team. If you have been recently discharged, check the information on your discharge contact leaflet for how to get in contact with them. Alternatively, you can contact Community Liaison who will be able to put you in touch with the SCI Psychosocial team.
You can contact the LSCIC Community Liaison team via email rnoh.
Spinal Injuries Association (SIA) offers SCI specialist counselling by phone or via video call.
Q I require URGENT HELP, who do I contact?
Call 999 or go to A&E now if:
- someone's life is at risk – for example, they have seriously injured themselves or taken an overdose
- you do not feel you can keep yourself or someone else safe
A mental health emergency should be taken as seriously as a physical one. You will not be wasting anyone's time. Call 999.
There are free listening services which offer confidential support from trained volunteers, any time of day or night. You can talk about anything that's troubling you, no matter how difficult:
- Call 116 123 to talk to Samaritans, or email: jo
@samaritans.org for a reply within 24 hours.
- Text "SHOUT" to 85258 to contact the Shout Crisis Text Line, or text "YM" to 85258 if you're under 19.
- If you're under 19, you can also call 0800 1111 to talk to Childline. The number will not appear on your phone bill.
- To get help from emergency and crisis mental health services StayAlive - Essential suicide prevention for everyday life (prevent-suicide.org.uk).
These services will only share your information if they are very worried about you or think you are in immediate danger.
- There is an NHS urgent mental health helpline Mental Health Helpline for Urgent Help - NHS (www.nhs.uk) NHS urgent mental health helplines are for people of all ages. You can call for:
- 24-hour advice and support – for you, your child, your parent or someone you care for.
- help to speak to a mental health professional.
- an assessment to help decide on the best course of care.
Q I or someone I know is feeling suicidal and needs help IMMEDIATELTY, what do I do?
Call 999 or go to A&E now if:
- someone's life is at risk – for example, they have seriously injured themselves or taken an overdose
- you do not feel you can keep yourself or someone else safe
A mental health emergency should be taken as seriously as a physical one. You will not be wasting anyone's time. Call 999
- There is an NHS urgent mental health helpline Mental Health Helpline for Urgent Help - NHS (www.nhs.uk) NHS urgent mental health helplines are for people of all ages.
You can call for:
- 24-hour advice and support – for you, your child, your parent or someone you care for.
- help to speak to a mental health professional to help decide on the best course of care .
Police can carry out a welfare check and liaise with mental health service What to do if you’re concerned for someone’s welfare | Police.uk (www.police.uk)
- StayAlive - Essential suicide prevention for everyday life (prevent-suicide.org.uk) offers help to access emergency and crisis mental health services.
Q What general information does the NHS offer about emotional and mental health?
- Low mood, sadness or Depression Get help with low mood, sadness or depression - NHS (www.nhs.uk)
- Grief and feelings of loss Get help with grief after bereavement or loss - NHS (www.nhs.uk)
- Feeling lonely and isolated Get help with loneliness - NHS (www.nhs.uk)
Loneliness in older people - NHS (www.nhs.uk)
- Hallucinations and hearing voices Hallucinations and hearing voices - NHS (www.nhs.uk)
Q What relationship advice and support is available after a SCI?
Carol Smyth (Counselling Psychologist, LSCIC) offers a couples counselling service. Please contact LSCIC Community Liaison Team to request a referral.
You can contact the LSCIC community liaison team via email rnoh.liaisonsisters@nhs.net or telephone 020 8909 5594 / 020 8909 5597
Relate offers relationship and counselling for individuals, couples and families.
Spinal cord injury charities offer advice and support on relationships with access to specialist advice, peer support and counsellors:
- Back Up Family Support: If you are a parent, partner, child or any other family member of a person with a spinal cord injury, Back Up Family Support team are trained to listen, offer advice and support you to make positive changes in your life. Call 020 8875 1805.
- Spinal Injuries Association (SIA) offer family support
They share that some of the most common relationship problems are:
- Not being able to play with your children in the same way, which can make you feel less connected to them.
- Feeling isolated because you have moved to a specially adapted house in a new area.
- Changes in your sex life, which can lead to difficulties with a partner.
- You or your partner feeling isolated if you don’t want to socialise as much as before.
Q What support is available about intimacy and sex after SCI?
After spinal cord injury, sex and relationships may be a worry. You may be concerned about sexual function, or bladder and bowel management while being intimate. You are not alone, and SCI charities have lots of supporting information and advice.
- In our ‘information for you’ section we have a detailed article on this subject with additional resources at the end.
- What Next? Online course covers sex and relationships post SCI. The course consists of a two-day online live series of zoom sessions but also an online guide available 24/7. This guide has a whole module on sex and relationships and people can sign up here:
- 1 to 1 peer Support can be offered through our mentoring service or for a one off call/question or generally more information then Back Up connect is the best way to get in contact. Sex and relationships often are high up the list of things to talk about and not taboo for us or our volunteers
Martin Hipwell Peer Support Worker from Back Up SCI Charity has compiled a list of useful links here.
Transport & Driving
Q What support is available to start / return to driving?
Disability equipment and transport - GOV.UK (www.gov.uk)
Home - Driving Mobility Driving Mobility ensures that there are common standards, promotes good practice and offers training and education to all regional centres, whilst working closely with associated national organisations. These include the Department for Transport, Driver and Vehicle Licensing Agency, Driver and Vehicle Agency (NI), Motability and the Police.
Q How do I get a driving assessment?
Please visit: www.disabilitydrivinginstructors.com
Q What are the rules and regulations around powered wheelchairs and mobility scooters?
Mobility scooters and powered wheelchairs: the rules: Overview - GOV.UK (www.gov.uk)
Q What help is available in choosing a suitable vehicle?
The Motability Scheme allows you to use your qualifying mobility allowance to lease a new car, Wheelchair Accessible Vehicle (WAV), scooter or powered wheelchair.
Questions to ask when choosing a wheelchair accessible vehicle (WAV)
Naidex is the UK's leading event dedicated to empowering and supporting disabled individuals. The event covers all aspects of the disability journey, making it a truly holistic event. From family dynamics to education, employment opportunities to leisure and lifestyle choices.
Q How do I apply for a Blue Badge parking permit?
People with mobility difficulties are entitled to apply for a Blue Badge parking permit which allows parking in certain restricted areas and in some circumstances, there are free or reduced parking costs.
Rules are different depending on which area you are parking. Details are found on the local council websites. You can apply for the badge via this weblink.
Find out where Blue Badge holders can park - GOV.UK (www.gov.uk) lists where blue badge holders can park.
Q How do I find out about purchasing an accessible vehicle?
Motability Scheme | Lease a car, WAV, scooter or wheelchair is an organisation that offers advice about using a wheelchair accessible vehicle.
New and used car scheme – you can use Motability money using either scheme or you can purchase independently. This could affect your PIP payments so should be considered.
Public Transport
Q What transportation options are there for people with a spinal cord injury?
Back Up SCI charity offers:
- A city skills course is all about getting out and navigating a town centre e.g. using public transport/wheelchair skills
- A travel guide covering using different forms of transport
Transport for London TFL offer:
- Freedom Pass is a concessionary travel scheme to provide free travel to residents of Greater London, England, who are aged 66 and over or who have a disability. You can find out more information or how to apply via this link
- Accessible journey planner TFL offers an online journey planner highlighting accessible route options including step free access and locations of raised platforms.
Disabled persons bus pass: Apply for a disabled person's bus pass - GOV.UK (www.gov.uk)
National BUS and COACH services: Transport support services for disabled people: Cars, buses and coaches - GOV.UK (w-ww.gov.uk)
National TRAIN services: Transport support services for disabled people: Trains - GOV.UK (www.gov.uk)
National Rail provides advice about planning train travel across the UK: Accessible Train Travel and Facilities (nationalrail.co.uk)
Taxis
- Dial-a-Ride is Transport for London's free door-to-door service for those with permanent or long-term disabilities. You can find out more information and how to apply by following the link 
- For information on the LondonTaxicard scheme: https://
www. londoncouncils.gov.uk/ services/ taxicard - The Barbara Bus Fund - The Barbara Bus Fund - Free Transport for Wheelchair Users (websfor.com) is a charity that offers the option to hire a wheelchair accessible vehicle. Anyone with a clean driving license who has completed a DVLA check can drive the vehicle.
- Transport support services for disabled people: Taxis and minicabs - GOV.UK (www.gov.uk)
Planes: Transport support services for disabled people: Planes - GOV.UK (www.gov.uk)
Ships: Transport support services for disabled people: Ships - GOV.UK (www.gov.uk)
Q Where can I find help with making holiday and travel plans?
Travelling with mobility difficulties can be a challenge but there is lots of advice available.
Spinal Injuries Association (SIA) offer support through their website
Back Up offers practical advice for travelling and holidaying with a spinal cord injury
Age UK have helpful advice on their website.
General advice on travelling with a disability
Q What support is available to help me access cultural activities?
Carer’s card offers online savings and discounts: Carers Card UK - Carers ID Card
Concerts and festivals: I have a disability - how do I book tickets that will meet my access requirements? – Ticketmaster Help
Cinema: Home - CEA Card
Theatre:Access Membership Scheme | Access | ATG Tickets
Q How can I find out more about accessible exercise options?
You can speak to your LSCIC physiotherapist by calling 020 8909 5500, or emailing Karen.
WheelPower is a charity supporting individuals with return to activity, exercise and sport after a spinal cord injury Get Active - WheelPower
Back Up offer a ‘What Next’ course which is specifically designed for people that are newly injured and is designed to bridge the gap from rehab to home. More info here
Local sports opportunities can be explored here: What shall I do? | Every Body Moves
Gyms with more accessible equipment can be identified here: Inclusive Fitness | Activity Alliance
Q What are the guidelines for exercising after a SCI?
There are guidelines published advising about frequency and type of exercise to get back to physical activity after a period of inactivity. Wheelpower Physical activity guidelines UK and advice on how to get started and clear guidelines and useful tips. Physical Activity after a spinal cord injury - WheelPower
Please speak to your Physiotherapist for advice about exercise options.
They can also refer you to Wheel Power Physical Activity Advisor, Mark O'Neill .
There are several charities and organisations which offer accessible activity options:
- Access Adventures offer a range of sporting activities for people with disabilities - wakeboarding, water-skiing, alpine skiing, paddle sports, kiting or biking
- Sportability – What We Do provide a range of accessible sports in more areas of the UK for people with paralysis.
- Neurokinex offers specialist rehab gyms in Hemel Hempstead and Gatwick. Funding is available for 6 free sessions through the NHS.
- VIM Rehab offers an accessible gym with assisted technologies. Speak to your Physiotherapist or Occupational Therapist to ensure co-ordination of your care and therapy needs.
- Back Up offers Action-Packed Activity Courses | Back Up (backuptrust.org.uk)
- Aspire National Training Centre offers access to swimming, classes, gym, FES cycling, wheelchair basketball and rugby
- Some local gyms often offer discounted membership for gym, swim and classes:
- Gyms with more accessible equipment can be identified here:
Q How do I check accessibility of local amenities?
To check accessibility of some public spaces, look at Home | AccessAble or download the app and Sociability App.
Snowball app is ‘TripAdvisor for the disabled community’. It aims to improve everyday accessibility and help users plan visits and enjoy public spaces without unnecessary barriers. It includes Accessible Playgrounds, Fuel Stations, Restaurants, Tourist attractions:
Q I can’t find what I want I am looking for
Please contact LSCIC Community Liaison Team via email rnoh.
or
LSCIC Community Case Manager on 020 8385 3019 or by email: m.
or
London SCI Network Education Lead Emma.