The RNOH aims to be a world-leading orthopaedic hospital with the best patient care and staff experience in the NHS

XLH (X-linked hypophosphatemia) Patient and Family Meeting

On Thursday 15th February The RNOH welcomes you to this event to share your experiences and ideas around XLH (X-linked hypophosphatemia), a genetic disorder that affects about one in 20,000 people. XLH is characterized by low levels of phosphate in the blood. Phosphate levels are low because phosphate is abnormally processed in the kidneys, which causes a loss of phosphate in the urine (phosphate wasting) and leads to soft, weak bones.

The location is the Village Hotel, Centennial Park, Elstree WD6 3SB

Programme:

  • 13.00 - Registration
  • 13.30 - Lunch
  • 14.30 - Chair’s Welcome: Dr Benjamin Jacobs
  • 14.35 - Professor Zulf Mughal - How does XLH affect children & teenagers? Professor Mughal is a paediatrician who is a leader in treating children with rare bone diseases. He conducted clinical trials of the new FGF23 treatment for XLH in Manchester.
  • 15.00 – Mr Mike Harrison "Pulp Fiction - dental problems in XLH" Mr Harrison is a dental surgeon at St Thomas' and the Evelina Children’s Hospital. He is an expert in treating children with dental problems associated with rare bone diseases such as rickets.
  • 15.30 - Tea Break
  • 15.45 - Professor Zulf Mughal - Medical treatment of XLH now and in future
  • 04.15 - Mr Tahir Khan - Surgical treatments for children with XLH Mr Tahir Khan is a consultant orthopaedic surgeon at the RNOH. He is an expert in the surgical treatment of rickets. He has always enjoyed interaction with patients, taking time to discuss all treatment options.
  • 16.45 - Questions and Answer sessions with speakers 17.00 - Close

For further information, call 0208 909 5871 or email zohra.patel1@nhs.net

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